Charlotte’s Helix, Charlotte’s Legacy

AN25K_FINALMy dear friend Charlotte doesn’t have much time left. A few months ago, she was diagnosed with terminal breast cancer and she’s hoping for another six months. It’s not enough time for her to celebrate another birthday. This hasn’t stopped Charlotte. After helping her daughter recover from anorexia in 2009, she has remained on the front lines helping other parents fight this disorder. It’s her passion, her legacy for everyone.

Since doctors aren’t giving Charlotte another birthday, Laura Collins is donating hers to a project called Charlotte’s Helix. The premise is simple: sequence 25,000 genomes of AN sufferers to help figure out what causes the illness and how we can better fight it. The Anorexia Nervosa Genetics Initiative is part of AN25k, but ANGI is only part of this. Getting 25,000 participants and 25,000 genomes costs a lot of money and will take a lot of volunteers, but researchers believe it will be worth it.

The problem? Thus far there hasn’t been the funding to bring AN25k to the UK, where Charlotte lives. Enter Charlotte’s Helix.


In honor of Charlotte and her tireless efforts, we’re looking for donations to keep Charlotte’s legacy alive long after her–and possibly the rest of us–are long gone. Donate what you can. I can’t give my birthday, but I can give my Christmas. What the hell am I going to do with more luggage, anyway?

What can you do? Donate if you can. Any currency. Donations are currently being handled by FEAST and BEAT on both sides of the Atlantic, and all donations are tax-deductible. Anything you can give is welcome. Just make sure to note “Charlotte’s Helix” on your donation.

Can’t afford a donation? No worries–you can still help. Visit, share, like, follow the following pages:’s-helix

Not a social media fan? Perhaps you can support Charlotte by arguing with people in the comments section of bad articles about eating disorders. I’m sure she’ll see you there.

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3 Responses to “Charlotte’s Helix, Charlotte’s Legacy”

  1. I think this is wonderful, I’ve been sharing and sharing and am going to do some more sharing. Actually, I think CHARLOTTE is wonderful, and I only wish I’d met her in real life, and sooner. She inspires me, she really does.
    (so do you, just sayin 🙂 )
    I have signed up to donate my birthday, and participated in the study here in Australia, and am committed to spreading the word among other people with ED. I wish I could do more!
    I am sure I will bump into you on many bad ED articles in the future. 😉
    Thank you, Carrie. 🙂

  2. I have already submitted my blood samples to ANGI!! I am also starting a drive to get my friends to sign up for ANGI at the NEDA walk in Baltimore this SUnday!

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